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Ethical considerations

JW J. Wieting
CE C. Eberlein
SB S. Bleich
HF H. Frieling
MD M. Deest
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This study was approved by the local Ethics Committee of Hannover Medical School and adhered to the Declaration of Helsinki. All informants in this study were informed and gave their written consent for participation in this study and publication of the results.

Data were obtained using a web‐based questionnaire for self‐completion. The questionnaire was not addressed to the people with PWS themselves, but to their caregivers. The online questionnaire was administered using the survey administration tool SoSci Survey (Leiner 2019) and made available to participants at www.soscisurvey.de. The link to the survey was sent to potential participants via the mailing list of the Prader–Willi Syndrome Association Germany e.V. Therefore, the survey was limited to participants from Germany. Responses submitted between 3 August 2020 and 25 August 2020 were included in the evaluation.

Copyright and License information:  ©2021 The Authors. published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disibilities and John Wiley & Sons Ltd.
This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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