We surveyed the first 125 PCPs from each city who were elected by a BFOR participant to share his or her BRCA1/2 results. Using a combination of questions derived from other surveys [14–16] and questions developed specifically for the BFOR project (Supplement), the survey gathered general demographic and practice information, assessment of BRCA1/2 mutation knowledge, PCPs’ opinions on incorporating genetic testing into their existing practices, and willingness to disclose the results of their patients’ testing obtained through the BFOR study. We mailed paper surveys, although we also provided PCPs the option to participate via the Internet. Each initial survey mailing included a personalized cover letter, an up-front, unconditional $50 incentive, a four-page survey designed to be completed in less than 10 min, and a pre-paid return envelope. Surveys were prelabeled with each PCP’s assigned study identification number to allow study staff to identify which PCPs had already responded; no other identifiers were included in PCPs’ responses. First and second reminders were sent via mail roughly three and 6 weeks, respectively, after the initial mailing. These reminders contained personalized letters, a second copy of the survey, and a pre-paid return envelope.
Do you have any questions about this protocol?
Post your question to gather feedback from the community. We will also invite the authors of this article to respond.