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Patient and public involvement

TL TS van Lieshout
SV S Vonk
ED E Driehuis
AR AJ Roeterdink
NG NA Goto
TV TJFM Vogels
WK WCS Kooijman
JB JAJ Bart
MG MI Broese van Groenou
BJ BC van Jaarsveld
AA AC Abrahams
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Patient and public involvement has occurred throughout the project with the help of the Dutch Kidney Patients Association (NVN). The NVN is actively involved in all work packages of the DOMESTICO project as member of the steering committee and as member of several project groups. The NVN is also involved in the present study. They contributed to the design of the study protocol. Study progress and study results will be discussed and shared with the NVN and spread via their website, their journal (Wisselwerking) and at national conferences for kidney patients and their caregivers. Furthermore, the results will be used to further develop a caregiver module as an extension of the decision aid the Kidney Guide (Nierwijzer.nl) of the NVN.23

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