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Survey of the NCRI Consumer Forum

JL Julia Lai-Kwon
AV Alyssa M Vanderbeek
AM Anna Minchom
OA Olalekan Lee Aiyegbusi
DO Della Ogunleye
RS Richard Stephens
MC Melanie Calvert
CY Christina Yap
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This was a cross-sectional, single time point survey of NCRI Consumer Forum members (which include patients and carers who are affected by cancer and are involved with research activities) able to complete the survey via Zoom online polling. The NCRI Consumer Forum is a partnership between research funders, patients, and carers in the United Kingdom which promotes consumer involvement in cancer research. Consumers did not need to have participated in a DFOT to participate in the survey. Participants were shown a 20-min educational presentation on the use of PROs in DFOT prior to completing the survey.

The 8-question survey focused on prior experience participating in a clinical trial that collected PRO data, preferences regarding PRO collection (time willing to spend completing PROs, preferred method of PRO collection eg. paper, electronic), and attitudes toward using PROs to define tolerable doses.

Results were analyzed by AV/CY using R (version 3.6.0). Descriptive statistics were used to summaries responses.

Copyright and License information:  ©2022-06-28 The Author(s) 2022. Published by Oxford University Press.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.

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