Schedule

We will hold two independent online consensus meetings, including at least three people from each stakeholder group, to make it feasible for the participants living in different time zones. The unique outcomes identified for inclusion in the COS from each of the two consensus meetings will be discussed at a third, final online consensus meeting attended by stakeholders representing patients’ parents/family members and parent representatives, researchers, and healthcare providers from high, low, and middle-income countries.

During the meetings, the outcomes emerging from the RTD will be presented to the participants, along with the voting patterns of the stakeholder groups for each outcome. An experienced facilitator who will not participate in voting will chair each consensus meeting. There will be anonymous, computerised voting after a discussion of each outcome. If at least 80% of participants, including at least one representative from each stakeholder group, vote in favour of an outcome, it will be included in the COS.