The Dutch version of the CHAQ [32] assesses functional ability in daily life activities and distinguishes between the following eight domains: dressing, arising, eating, walking, hygiene, reach, grip and activities (30 items). The response scores for each item range from 0–3. The highest score of an item within a domain determines the domain score. The utilization of assistance or aids in a domain sets the domain score to a minimum of two. The mean score of the eight domains determines the CHAQ disability index (CHAQ-DI) and ranges from zero (no disability) to three (disabled) [32,33]. Children under eight are proxy-reported. Children aged 8–18 years self-report. The pain and general health Visual Analogue Scales (VASs) supplement the CHAQ. The pain VAS assesses subjective pain over the last week. The intensity of pain is scored on a 0–100 scale, with zero referring to “no pain” and 100 to “very severe pain”. Children under eight are proxy-reported. Children aged 8-18 years self-report. The general health VAS assesses current subjective general health. General health is scored on a 0–100 scale, with zero referring to “very good general health” and 100 to “very poor general health”. Children aged 4–18 years are proxy reported. The CHAQ, pain VAS and general health VAS are widely used rating scales with well-studied and excellent psychometric properties, and they discriminate well between children with chronic conditions and healthy children [32,33,34,35].
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