From 9 May 2020 until 31 May 2020, Lupus Europe, the umbrella organisation federating European national lupus patient associations, conducted an on-line survey among people living with lupus in Europe, to better understand the reality of living with SLE, as viewed from a patient perspective. The questionnaire, built by members of Lupus Europe, contained a total of up to 33 questions (see online supplemental appendix 1). The original English-language questionnaire was translated by volunteers of national lupus member organisations, and verified back with on-line translation tools to identify possible areas of incorrect translation, which were then verified back with native speakers. In total, 20 different language versions were made available. The last translations (Romanian and Estonian) were only available for a week.


Note: The content above has been extracted from a research article, so it may not display correctly.

Please log in to submit your questions online.
Your question will be posted on the Bio-101 website. We will send your questions to the authors of this protocol and Bio-protocol community members who are experienced with this method. you will be informed using the email address associated with your Bio-protocol account.

We use cookies on this site to enhance your user experience. By using our website, you are agreeing to allow the storage of cookies on your computer.