The main objective is to assess the feasibility and acceptability of a comprehensive, patient-centred service for palliative care in peadiatric oncology by adapting and advancing ePRO systems.

The corresponding primary outcome measures are the rates of recruitment, participation, adherence and premature discontinuation to the different components of the MyPal digital health platform during study enrolment. Further primary outcome measures are quantitative and qualitative data to be collected as follow-up to study enrolment: quantitative data from parents through the standardised System Usability Scale (SUS)11 as well as from the children through a newly adapted version of the SUS; qualitative data through structured interviews and focus groups with participants to identify further barriers, facilitators, preferences and engagement with regards to the MyPal digital health platform as well as differences between the participating clinical sites.

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