This study took place simultaneously with the first part of the SexIDI study, a cross-sectional study aiming to assess the impact of IBD on patients’ sexual QoL [9]. Patients attending the IBD outpatient clinic of Portimão Hospital with 18 to 65 years of age and an IBD diagnosis for at least 2 years, were considered eligible. The Portimão Hospital is part of the Algarve Hospital University Center that includes the “Portimão unit” and the “Faro unit”. This is a general, tertiary care, public Hospital center; the Portimão unit provides care to approximately 500 gastroenterology outpatients monthly (according to January to March 2019 hospital statistics). Two clinicians (J.R. and H.T.S.) conducted eligibility assessments and invited patients to participate in the study. One hundred, consecutive patients were invited to participate between July and December 2016. Patients willing and able to participate signed an informed consent form prior to inclusion.

At baseline, patients were given a multimodal form including not only the SIBDQ-PT, but also questions regarding socio-demographic variables (age, sex, nationality, educational level, professional status, relationship status), clinical variables (height and weight, type of IBD and disease duration), and three already validated scores: (1) the short version of the Social Desirability Scale (SDS-SF) [10], which measures the tendency to engage in socially desirable responding; (2) the Sexual Quality of life questionnaire Male/Female (SQol M/F) [11], which focuses on patients’ feelings about their sexual life; and (3) the Nine-item Patient Health Questionnaire (PHQ-9) [12], which is a depression spectrum disorder symptom scale. The SIBDQ-PT was later applied in two other timepoints, approximately 2 and 4 weeks after baseline, and at the last timepoint patients were also questioned about whether they felt an “overall worsening in their general well-being”. In all cases the questionnaires were anonymous and self-administered.

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