Disease specific quality of life questionnaire and symptom score indices

The Short Inflammatory Bowel Disease Questionnaire (SIBDQ) is a validated tool for the measurement of health-related quality of life in adult patients with IBD [17]. The questionnaire is based on four domains: bowel symptoms, emotional health, systemic systems, and social function. Furthermore, patient reported outcome (PRO) scores were used to monitor Crohn’s disease and ulcerative colitis activity. For Crohn’s disease, patients were asked components of the Harvey-Bradshaw Index including the severity of their abdominal pain and the average number of liquid bowel movements they’ve had in the past week [18]. Meanwhile, for ulcerative colitis, patients were asked components of the Mayo score including their stool frequency and the presence of rectal bleeding [19]. The SIBDQ and patient reported outcome scores are fully integrated within the HealthPROMISE application and patients are asked to complete them every 2 weeks. Based on their bi-weekly responses, clinicians can identify patients who are not in good control of their condition who may need additional interventions or referrals. Patients were also asked to complete a baseline SIBDQ and an end-of-study SIBDQ at 52 weeks to determine overall quality of life improvements after HealthPROMISE use.

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